By 2007, my mom could no longer communicate due to her continued decline from dementia. Around that time, I had been reading about the idea that music could evoke memory in Alzheimer’s patients. Petr Janata, a cognitive neuroscientist at the University of California concluded, “What seems to happen is that a piece of familiar music serves as a soundtrack for a mental movie that starts playing in their head. It calls back memories of a particular person or place, and they might all of a sudden see that person’s face in their mind’s eye.” It is a part of the brain that is the last to deteriorate from the disease.
I found this concept interesting given my mom’s love for music. Ever since reading this study, I have requested that the staff keep a radio on in her room and when I visit I wheel her in to the music room where I plunk away on the piano. She expresses a very intense and loud combination of laughing and frustration when I do. I told my husband she is remembering how awful I sounded while reluctantly practicing my piano as a kid.
It’s this idea that led me to create the piece “I Am Still Here”. I knew from that experience that my mom was still there deep, deep inside. It is a fully constructed hand-stitched coat made from paper and old newsprint from my hometown paper.

Marilyn Stevens, I Am Still Here, 26w 7d 50h, 2007
Another great thing about this piece is that I collaborated with a poet friend, Zac Stafford. I gave him the title without telling him about the piece. I think the poem fits perfectly with what I was trying to say or what my mom would. You can see it hand stenciled on the inside back.

I Am Still Here, Detail
To see all posts in this series go to the category, personal storytelling .